Re: [OT] How'd it go, Sal?

This WebDNA talk-list message is from

2006

It keeps the original formatting. numero = 67091
interpreted = N
texte = Well, things seemed to be okay until just recently. I have beenscheduled for another surgery to remove my kidney on May 12th. I amflying to Cleveland on Tuesday to have the surgery. Apparently, thefirst doctor left positive margins when he removed the tumor whichmeans that the other side of the cut he made to remove the tumor stillhad cancer cells. He told me my followup care would just be a waitand see approach. The letter I sent to the Cleveland Clinic and Dr.Novick pretty much tells the whole story. Dr. Novick is the best inthe nation, so I am not taking any chances this time and am going tothe best.My letter to Dr. Novick, Chairman of the Glickman Urological Instituteat Cleveland Clinic.Quote:April 26, 2006RE:CCF# (MRN) xxxx-xxxxxAndrew C. Novick, M.D.Chairman, Glickman Urological InstituteDear Dr. Novick,I am writing to you in hopes that you may guide me to the proper careof my diagnosis of Renal Cell Carcinoma. On March 8, 2006, you hadprovided me with a second opinion through the eCleveland Clinic. Letme start by thanking you for your second opinion. I realize now that Ishould have had my surgery performed at the Cleveland Clinic. Instead,I was assured by my Urologist that he was very experienced in thisprocedure and had performed many, all with success.My Urologist told me that during surgery, a Pathologist would beavailable to examine the tumor and if the tumor was not cancer, hewould save more of the kidney. He stated that if the tumor waspositive for cancer, he would be sure to take out enough of thesurrounding tissue as possible. In the event he could not remove thetumor and surrounding tissue completely, the entire kidney would needto be removed.You had predicted in my second opinion that open surgery was preferreddue to possibility of bleeding and an open surgery would be safer. MyUrologist performed an open surgery, but no Pathologist was utilized.The surgery lasted an extra 2 hours due to bleeding and I was given 2pints of blood.After surgery, my family and I kept asking if the tumor was cancer. Hecontinued to assure us that he did not believe it was cancer. Hisassistant came to see how I was doing, and when asked, said without adoubt that the tumor was cancer. On the last day of my hospital stay,my Urologist told me that the tumor was cancer but he had got all ofit and there was nothing to be concerned about.Two weeks later, I visited my Urologist for removal of the staples andto go over the Pathology Report. He stated that the Pathology reportindicates that there are positive margins. He also said that he thinksthat he cauterized the entire area enough to have killed any remainingcancer cells. He said that my follow up care would consist of a CTscan 3 months after surgery and every 6 months thereafter. I asked himif during the 3 month period before the scan if the cancer could growand spread quickly. He said that the cancer would be caught in timebefore it could spread.On Friday, April 21, after posting my situation to the Kidney CancerAssociation email list, several people questioned my follow up careand asked if I had a copy of my Pathology Report. I obtained myPathology Report and found that I had a Fuhrman Grade of 3 out of 4.Upon further research, I have come to understand that the FuhrmanGrade is an indication of how aggressively the cancer grows. I calledthe Cancer Institute of America and spoke to a Nurse Oncologist whoseemed to indicate that the only proper treatment of Renal CellCarcinoma is full excision of all the cancer cells and positivemargins are not acceptable.I write to you today for some guidance and help. I am concerned thatthe longer I wait, the less chance I have to limit the cancer to thekidney. I am also concerned of the possibility that the cancer hasalready escaped the kidney due to the excessive bleeding during theprocedure and the positive margins. What should my follow up care be?Should I have my right kidney removed? Can I find out for sure if ithas spread? Is there some new drug that might kill any remainingcancer cells?Dr. Novick, I need some professional guidance and am seeking youradvice. If that means that I need to fly to Cleveland to have theRadical Nephrectomy, then that is what I will do. If you need me topay for another Second Opinion, then I will submit payment, but pleasehelp me get the proper care that I need.Thank you,Salvaore B. D'Anna(2) Enclosures: eCleveland Clinic Second Opinion; Surgical Pathology ReportDr. Novick called me on Monday and immediately said that the Kidneyshould be removed. He gave me the names of two surgeons in California,one from USC and one from UCSF. After discussing my options with myfamily, it was decided that the best course of action was to go toCleveland and have Dr. Novick perform the surgery. I will have thesurgery May 12th and will leave for Cleveland May 9th. I am notworried about the surgery and know that I can beat this Cancer, aslong as I know I am receiving the proper care. Dr. Novick is one of,if not the best in the country, so I know I am good hands.Sal D'AnnaOn 5/7/06, Dan Strong wrote:> Just wondering how it went with your surgery. You can't announce somethin=g like that to the list> and then just leave us hanging. I've deduced from your post the other day= that you are still alive> :-) but still how are you feeling, man?> -Dan>> -------------------------------------------------------------> This message is sent to you because you are subscribed to> the mailing list .> To unsubscribe, E-mail to: > To switch to the DIGEST mode, E-mail to > Web Archive of this list is at: http://webdna.smithmicro.com/>-------------------------------------------------------------This message is sent to you because you are subscribed to the mailing list .To unsubscribe, E-mail to: To switch to the DIGEST mode, E-mail to Web Archive of this list is at: http://webdna.smithmicro.com/ Associated Messages, from the most recent to the oldest:

Re: [OT] How'd it go, Sal? ( "Bess Ho" 2006)
Re: [OT] How'd it go, Sal? ( Stuart Tremain 2006)
Re: [OT] How'd it go, Sal? ( "sal danna" 2006)
[OT] How'd it go, Sal? ( "Dan Strong" 2006)

Well, things seemed to be okay until just recently. I have beenscheduled for another surgery to remove my kidney on May 12th. I amflying to Cleveland on Tuesday to have the surgery. Apparently, thefirst doctor left positive margins when he removed the tumor whichmeans that the other side of the cut he made to remove the tumor stillhad cancer cells. He told me my followup care would just be a waitand see approach. The letter I sent to the Cleveland Clinic and Dr.Novick pretty much tells the whole story. Dr. Novick is the best inthe nation, so I am not taking any chances this time and am going tothe best.My letter to Dr. Novick, Chairman of the Glickman Urological Instituteat Cleveland Clinic.Quote:April 26, 2006RE:CCF# (MRN) xxxx-xxxxxAndrew C. Novick, M.D.Chairman, Glickman Urological InstituteDear Dr. Novick,I am writing to you in hopes that you may guide me to the proper careof my diagnosis of Renal Cell Carcinoma. On March 8, 2006, you hadprovided me with a second opinion through the eCleveland Clinic. Letme start by thanking you for your second opinion. I realize now that Ishould have had my surgery performed at the Cleveland Clinic. Instead,I was assured by my Urologist that he was very experienced in thisprocedure and had performed many, all with success.My Urologist told me that during surgery, a Pathologist would beavailable to examine the tumor and if the tumor was not cancer, hewould save more of the kidney. He stated that if the tumor waspositive for cancer, he would be sure to take out enough of thesurrounding tissue as possible. In the event he could not remove thetumor and surrounding tissue completely, the entire kidney would needto be removed.You had predicted in my second opinion that open surgery was preferreddue to possibility of bleeding and an open surgery would be safer. MyUrologist performed an open surgery, but no Pathologist was utilized.The surgery lasted an extra 2 hours due to bleeding and I was given 2pints of blood.After surgery, my family and I kept asking if the tumor was cancer. Hecontinued to assure us that he did not believe it was cancer. Hisassistant came to see how I was doing, and when asked, said without adoubt that the tumor was cancer. On the last day of my hospital stay,my Urologist told me that the tumor was cancer but he had got all ofit and there was nothing to be concerned about.Two weeks later, I visited my Urologist for removal of the staples andto go over the Pathology Report. He stated that the Pathology reportindicates that there are positive margins. He also said that he thinksthat he cauterized the entire area enough to have killed any remainingcancer cells. He said that my follow up care would consist of a CTscan 3 months after surgery and every 6 months thereafter. I asked himif during the 3 month period before the scan if the cancer could growand spread quickly. He said that the cancer would be caught in timebefore it could spread.On Friday, April 21, after posting my situation to the Kidney CancerAssociation email list, several people questioned my follow up careand asked if I had a copy of my Pathology Report. I obtained myPathology Report and found that I had a Fuhrman Grade of 3 out of 4.Upon further research, I have come to understand that the FuhrmanGrade is an indication of how aggressively the cancer grows. I calledthe Cancer Institute of America and spoke to a Nurse Oncologist whoseemed to indicate that the only proper treatment of Renal CellCarcinoma is full excision of all the cancer cells and positivemargins are not acceptable.I write to you today for some guidance and help. I am concerned thatthe longer I wait, the less chance I have to limit the cancer to thekidney. I am also concerned of the possibility that the cancer hasalready escaped the kidney due to the excessive bleeding during theprocedure and the positive margins. What should my follow up care be?Should I have my right kidney removed? Can I find out for sure if ithas spread? Is there some new drug that might kill any remainingcancer cells?Dr. Novick, I need some professional guidance and am seeking youradvice. If that means that I need to fly to Cleveland to have theRadical Nephrectomy, then that is what I will do. If you need me topay for another Second Opinion, then I will submit payment, but pleasehelp me get the proper care that I need.Thank you,Salvaore B. D'Anna(2) Enclosures: eCleveland Clinic Second Opinion; Surgical Pathology ReportDr. Novick called me on Monday and immediately said that the Kidneyshould be removed. He gave me the names of two surgeons in California,one from USC and one from UCSF. After discussing my options with myfamily, it was decided that the best course of action was to go toCleveland and have Dr. Novick perform the surgery. I will have thesurgery May 12th and will leave for Cleveland May 9th. I am notworried about the surgery and know that I can beat this Cancer, aslong as I know I am receiving the proper care. Dr. Novick is one of,if not the best in the country, so I know I am good hands.Sal D'AnnaOn 5/7/06, Dan Strong wrote:> Just wondering how it went with your surgery. You can't announce somethin=g like that to the list> and then just leave us hanging. I've deduced from your post the other day= that you are still alive> :-) but still how are you feeling, man?> -Dan>> -------------------------------------------------------------> This message is sent to you because you are subscribed to> the mailing list .> To unsubscribe, E-mail to: > To switch to the DIGEST mode, E-mail to > Web Archive of this list is at: http://webdna.smithmicro.com/>-------------------------------------------------------------This message is sent to you because you are subscribed to the mailing list .To unsubscribe, E-mail to: To switch to the DIGEST mode, E-mail to Web Archive of this list is at: http://webdna.smithmicro.com/ "sal danna"

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Re: [OT] How'd it go, Sal?

2006

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